A young CMT patient who came to accept her disability, as I had to do many years ago.
When I was younger, maybe around the age of 7, I remember we used to have to run around the playground in primary school during P.E. I used to hate P.E because I was so weak and didn’t understand why I wasn’t as good as the other children. I vividly remember running around this track and kids would pass me and say “slow coach” and “catch up” and I remember the frustration of pounding my feet into the pavement as hard as I could muster and not getting any results. We later found out, many years later at the age of 11, that my weakness was due to Charcot Marie Tooth disease (a condition where nerves are damaged, causing muscle weakness).
I was in high school when my symptoms started to worsen. I had visited the doctors in my younger years but we were told that my leg weakness…
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